Anyone with an autistic child? Get in here.

[Mach1]

My best friends son had severe autism. He suffered drop attack seizures, and passed away last year at age 16. He was diagnosed early, but the severity was not known at the time. He had so many issues in his life, it was very hard to watch. He had some success with a cetocenic(sp) diet. After watching several documentaries, CBD would have been an option for him due to the frequency of his seizures. At one point, he was having hundreds a day. By the time that treatment was an option, he was already gone.

Do not take this condition lightly. Do not try to work on him from home.


RIP Bryce. I still miss you little buddy.

Thats terrible, I'm sorry to hear that.

[diablo rojo]

We just spoke with the NISD school Psychologist who recently scored all of my sons assessments. She said that they would put him at High Functioning Autism. This was based on meeting with us, a play based evaluation with him, and 3 questionaires from us. She said at his age, he is still non-categorical, but would benefit from intervention. He does qualify for PPCD. ( Preschool Programs for Children with Disabilities) We will have an ARD meeting with the Diagnostician at the Elementary campus before Christmas and hopefully be enrolled by January.

[Shockeruti]

We just spoke with the NISD school Psychologist who recently scored all of my sons assessments. She said that they would put him at High Functioning Autism. This was based on meeting with us, a play based evaluation with him, and 3 questionaires from us. She said at his age, he is still non-categorical, but would benefit from intervention. He does qualify for PPCD. ( Preschool Programs for Children with Disabilities) We will have an ARD meeting with the Diagnostician at the Elementary campus before Christmas and hopefully be enrolled by January.

As i said before, go to different schools and check out eqch ppcd program. Its not like regular school classroom where if you dont like the teacher its tough shit. Theres alot of 1-1 time with a very low teacher to student ratio. My sons ppcd class has 5 children with varing disabilities. There is 1 teacher and 2-3 aids and usually a vollunteer at any one time. Having a teacher that clashes with your child (like my sons first teacher) can be a nightmare and detrimental to your childs progress.

And get use to them ard and teacher meetings. We have one every quater...

[diablo rojo]

As i said before, go to different schools and check out eqch ppcd program. Its not like regular school classroom where if you dont like the teacher its tough shit. Theres alot of 1-1 time with a very low teacher to student ratio. My sons ppcd class has 5 children with varing disabilities. There is 1 teacher and 2-3 aids and usually a vollunteer at any one time. Having a teacher that clashes with your child (like my sons first teacher) can be a nightmare and detrimental to your childs progress.

And get use to them ard and teacher meetings. We have one every quater...

I've dealt with ARD meetings with my previous wife and her son. I totally agree with checking out other programs. We'll be keeping a close eye on his progress, for sure.

[Rreemo]

One of my best friends oldest son is moderate to heavy Asperger's. I know it sounds strange, but when he was just a little baby, you could see in his face that something was off. They were in total denial, but it was their first child so they really had nothing to compare to. He was very late in all of the milestones, walking, talking, etc. Really struggled with throwing fits and would actually go into an almost uncontrollable rage at times...it got a lot worse before it got better. He was kicked out of a couple pre-schools, and it wasn't until he finally got into Kindergarten/public school that they started really accepting the whole thing. The school called them out because he was such a huge disruption in class by 1st grade....they basically told them that if he was going to stay in public school, that he would have to go into special-ed.

They pulled him from public school and sent him to a private school (Somewhere in Denton) that was specifically for the treatment and advancement of autistic kids. It took a while...and I mean years, but he did turn a corner and made huge improvements in his social development.

He's a teenager now, and while still an awkward kid, he's adapted very well, and he's VERY smart. The kid has a photographic memory, and like Mentioned above, he gets fixated on things. Every time he comes to my house he begs me to go out to the garage or shop to look at my cars...he's always fascinated with the instrument clusters. He'll sit and stare for a few minutes, and then go sit somewhere else and draw an exact picture of the cluster.

I think it's really cool to see how far he's come...from being, at times, an uncontrollable child, to now someone you can sit and have an intelligent conversation with. They owe credit to the right treatment, though.

I see him eventually as a fully functional adult, who can be self dependent...but I think he's always going to be a little socially awkward. He's already started learning to drive, and he'll be ready to get his license in later 2016.

[Cooter]

I'm on the spectrum myself. I get vertigo with sensory overload. Hotel hallways, for example... the patterns they use on the carpets in order to hide stains make me dizzy. When I'm in a room with a lot of people who are all talking loudly and I'm unable to process each/every conversation, I get dizzy.

I have also struggled with feeling soulless throughout my life.

I wish that there had been more awareness when I was in my formative years.

May all who are effected live long and prosper!

My son tested within the autism spectrum, but not actually autistic. He has a sensory processing disorder. He is highly intelligent, so no insurance plan would ever cover any specialized treatment or learning. We had to do a ton of research and create an environment for learning, living, coping, etc.

It has worked out well. My biggest worry throughout all of it was that I wouldn't have the patience to be the father I need to be. People like my son can easily shut a person out, almost as if they are soulless. Today, we are the best of buds and his functioning is so good that no one knows his condition just by meeting him.

As with autism, there are triggers to behavoir. Control his environment and those triggers, you can control allow him to control his behavior.

[zora04]

Thats terrible, I'm sorry to hear that.

Thanks. It was by far the hardest funeral I have ever attended.

[GE]

Don't think we'd ever have seen a thread like this on here 15 years ago.

[Sgt Beavis]

Don't think we'd ever have seen a thread like this on here 15 years ago.

Yea, I agree. But that doesn't mean autism was less prevelent back then. They understood it a lot less back then. Even now it isn't well understood.

[BLAKE]

What I don't understand is why all the posts in this thread between midnight and now disappeared. Not a big deal, but it's strange.

[GE]

Yea, I agree. But that doesn't mean autism was less prevelent back then. They understood it a lot less back then. Even now it isn't well understood.

I think it's probably more so that back in the day, most of us were in our mid 20's and marriage wasn't even on the horizon yet. heh.

[Tremor14]

What I don't understand is why all the posts in this thread between midnight and now disappeared. Not a big deal, but it's strange.

Funny right? *add content **delete content

[mstng86]

Ran across this:

Autism cases in U.S. jump to 1 in 45: Who gets the diagnosis, in 8 simple charts

https://www.washingtonpost.com/news/to-your-health/wp/2015/11/13/autism-cases-in-u-s-rise-to-1-in-45-a-look-at-who-gets-the-diagnosis-in-8-simple-charts/

[Venom]

You know that with a AU diagnosis that he has a good change of qualifying for SSI benefits. I don't approve of taking a government handout but I figured I'd throw that out there.

[Sgt Beavis]

You know that with a AU diagnosis that he has a good change of qualifying for SSI benefits. I don't approve of taking a government handout but I figured I'd throw that out there.

Yea, I heard about that, but I believe that applies to those that are very mentally disabled and will not be able to support themselves. We have every confidence that Carpenter will be fine in the long term.