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  • Daughter's remission status=revoked :(

    *Warning-slight long read*

    Found out today that we will be restarting my daughter's injections for her JRA (Juvenile Rheumatoid Arthritis). She has been having flare ups and since we can't get it under control, she is having to start back on the shots.

    So, I've been wondering how to bring this up to everyone because, if you know you me, I do not like fundraising, asking for money, etc (when it comes to personal issues)...BUT, in light of Aly's remission status being revoked (ARGH!) I am reaching out to my friends and family again.

    There is an event that we would really like to be able to attend. It is a weekend for parents of and kids with JRA that will be full of activities/coping strategies for the kids and seminars/education for the parents. The only caveat is that you have to be invited AND the only way to get invited is to raise $2000 from your fundraising for the Arthritis Walk.

    We were able to raise over $700 so far, but WE CAN CONTINUE TO RAISE MONEY TO QUALIFY UNTIL JULY 31st! So PLEASE consider donating or feel free to pass the link on to your wall and ask your family and friends to consider supporting us on this journey of learning what we can do to help my baby girl deal with this debilitating disease. Our personal page for donations is listed below. Again, FEEL FREE TO SHARE this link-we could use all the help we can get!

    Thank you to our friends and family for supporting us so far and I truly appreciate those who were involved in the walk. You have no idea how much it meant to see you guys up and out early on a Saturday to help Aly.

    Last edited by Leah; 05-20-2013, 01:21 PM.
    Token Split Tail

    Originally posted by slow99
    Lmao...my favorite female poster strikes again.
    Originally posted by Pokulski-Blatz
    You are a moron .... you were fucking with the most powerful vagina on DFW(MU)stangs.

  • #2
    I wish I had extra money to throw your way Good luck, and I will send this out to my friends/family and assure them there isn't anyone who deserves it more than you guys.

    Comment


    • #3
      Originally posted by Ratt View Post
      I wish I had extra money to throw your way Good luck, and I will send this out to my friends/family and assure them there isn't anyone who deserves it more than you guys.
      I totally understand and just hearing the support and that you're sharing this means a lot to us! I truly appreciate it!
      Token Split Tail

      Originally posted by slow99
      Lmao...my favorite female poster strikes again.
      Originally posted by Pokulski-Blatz
      You are a moron .... you were fucking with the most powerful vagina on DFW(MU)stangs.

      Comment


      • #4
        I will share this with my supervisor at work.

        Comment


        • #5
          I'm in for $100. If I donate through that link, will it link it to you? I can meet you somewhere and give you cash if you prefer.

          Comment


          • #6
            Sorry to hear that. My ex had RA as well as Lupus and know how much work and cost is involved with treating it correctly. Is this a shared pool, or does the money go directly to y'all? The girl I see on the page is Maren.

            Comment


            • #7
              Originally posted by Ted View Post
              I will share this with my supervisor at work.
              LMAO-yeah, you do that.
              Originally posted by STANGGT40 View Post
              I'm in for $100. If I donate through that link, will it link it to you? I can meet you somewhere and give you cash if you prefer.
              Thank you so much!!!
              Originally posted by Grant View Post
              Sorry to hear that. My ex had RA as well as Lupus and know how much work and cost is involved with treating it correctly. Is this a shared pool, or does the money go directly to y'all? The girl I see on the page is Maren.
              Maren is a little girl we've met and now talk to regularly. She was the 'face of arthritis' for the Tarrant County walk so I'm not sure why it's linking to her.


              It should go directly to us and should be linking to our personal page for "Aly K". ???? Is the link below different for you? If I click on the first one, it shows our page so I'm not sure what you guys are seeing...

              Token Split Tail

              Originally posted by slow99
              Lmao...my favorite female poster strikes again.
              Originally posted by Pokulski-Blatz
              You are a moron .... you were fucking with the most powerful vagina on DFW(MU)stangs.

              Comment


              • #8
                Originally posted by Leah View Post
                LMAO-yeah, you do that.

                Thank you so much!!!

                Maren is a little girl we've met and now talk to regularly. She was the 'face of arthritis' for the Tarrant County walk so I'm not sure why it's linking to her.


                It should go directly to us and should be linking to our personal page for "Aly K". ???? Is the link below different for you? If I click on the first one, it shows our page so I'm not sure what you guys are seeing...

                http://www.kintera.org/faf/donorReg/...upid=undefined
                It looks like it's their main page. It says they had a goal of $52,500 and raised $52,562 (or something like that). I don't see anything about Aly...

                Comment


                • #9
                  Originally posted by STANGGT40 View Post
                  It looks like it's their main page. It says they had a goal of $52,500 and raised $52,562 (or something like that). I don't see anything about Aly...
                  Ok, I edited them-see if that one works...
                  Token Split Tail

                  Originally posted by slow99
                  Lmao...my favorite female poster strikes again.
                  Originally posted by Pokulski-Blatz
                  You are a moron .... you were fucking with the most powerful vagina on DFW(MU)stangs.

                  Comment


                  • #10
                    Originally posted by Leah View Post
                    Ok, I edited them-see if that one works...
                    That one worked.

                    Comment


                    • #11
                      Make sure and change the one on Facebook as well.

                      Comment


                      • #12
                        Originally posted by STANGGT40 View Post
                        That one worked.
                        Originally posted by STANGGT40 View Post
                        Make sure and change the one on Facebook as well.
                        Yay-thank you!
                        Token Split Tail

                        Originally posted by slow99
                        Lmao...my favorite female poster strikes again.
                        Originally posted by Pokulski-Blatz
                        You are a moron .... you were fucking with the most powerful vagina on DFW(MU)stangs.

                        Comment


                        • #13
                          Originally posted by Leah View Post
                          Yay-thank you!
                          No problem...I hope you make it!

                          Comment


                          • #14
                            Donated
                            http://www.truthcontest.com/entries/...iversal-truth/

                            Comment


                            • #15
                              Low dose naltrexone. It can be used in conjunction with standard treatments and as a user, I can say that it works. Look into it.

                              Comment

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